Today we received Belle's enzymes in the mail. Included was the invoice. Sticker shock is an understatment. For just a months supply it cost 5661.89....I had to pick my jaw up off the ground. After the shock I thanked God that I actually have insurance. I'm thankful that Derrick has a steady job and a steady paycheck. And yes we have to sacrafice having him around for months at a time but if that is the sacrafice that is needed to keep Belle happy then we'll do it. The kids may not understand the whys to why daddy has to go away but to able to keep all our children cared for it's a small price to pay.
Today was yet another day of tantrums and meltdowns. All Izabelle wanted was some tomatoes and her "special" milk. I had to keep saying no. Even offering alternatives didn't work today. I'm so worn out from all the "fighting". It breaks my heart that I can't give her what she wants. All these healthy things that we have been encouraging for her to eat over the past few years are now in a way poision. I'm praying that the addition of this enzyme will help ease the problem. I pray that she can enjoy some of what she used to. Eating out it no longer an option. At least not right now. Which is probably better for our wallets anyway. Taking her to birthday parties and events just got 10 times more challanging. I want Belle to be "normal" but now i know that will not be the case for her.I just pray God provides the guidence derrick and I will need through these beginning phases so that we can give belle the best possible childhood and start to life.
Friday, June 4, 2010
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